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NIH PCORI Toolkit on Engagement
April 3, 2019 @ 2:00 pm - 4:00 pm
Patient engagement toolkits: Using practice-based evidence to support translational research
Wisconsin Network for Research Support (WINRS) is an innovative and nationally-recognized patient and community engagement resource, based at the UW-Madison School of Nursing. Since 2010, WINRS has offered a suite of consultation services to address a persistent problem for researchers conducting clinical trials – how to effectively engage study participants, especially people from under-represented communities. WINRS has been invited to share their model for stakeholder engagement at a variety of national forums, including the 2018 Patient Centered Outcomes Research Institute (PCORI) Annual Meeting, “From Evidence to Impact: Putting What Works into Action” and the recent Association of Clinical and Translational Science (ACTS) Annual Meeting in Washington, DC.
Gay Thomas, WINRS co-founder and Director of Stakeholder Engagement, will lead a WINRS presentation to:
- Tell the story of WINRS’ innovative service, the Community Advisors on Research Design and Strategies (CARDS)®. The CARDS® are groups of community members from diverse backgrounds who review materials developed for research, education, and outreach.
- Highlight key “lessons learned” as a result of WINRS’ 9 years of experience facilitating more than 250 sessions with lay advisory boards and developing/delivering tailored orientation programs for over 20 unique stakeholder boards (more than 200 diverse stakeholders).
- Share WINRS toolkits to support successful patient engagement
Meeting Date: Wednesday, April 3, 2019
Meeting Time: 2:00pm Central Time (12:00pm Pacific Time)
Meeting number (access code): 628 960 836
Meeting password: UXusUW7K
Join by phone
1-650-479-3208 Call-in toll number (US/Canada)