NIH PCORI Toolkit on Engagement

Patient engagement toolkits:  Using practice-based evidence to support translational research

Wisconsin Network for Research Support (WINRS) is an innovative and nationally-recognized patient and community engagement resource, based at the UW-Madison School of Nursing. Since 2010, WINRS has offered a suite of consultation services to address a persistent problem for researchers conducting clinical trials – how to effectively engage study participants, especially people from under-represented communities. WINRS has been invited to share their model for stakeholder engagement at a variety of national forums, including the 2018 Patient Centered Outcomes Research Institute (PCORI) Annual Meeting, “From Evidence to Impact: Putting What Works into Action” and the recent Association of Clinical and Translational Science (ACTS) Annual Meeting in Washington, DC.

Gay Thomas, WINRS co-founder and Director of Stakeholder Engagement, will lead a WINRS presentation to:

• Tell the story of WINRS’ innovative service, the Community Advisors on Research Design and Strategies (CARDS)^®. The CARDS^® are groups of community members from diverse backgrounds who review materials developed for research, education, and outreach.
• Highlight key “lessons learned” as a result of WINRS’ 9 years of experience facilitating more than 250 sessions with lay advisory boards and developing/delivering tailored orientation programs for over 20 unique stakeholder boards (more than 200 diverse stakeholders).
• Share WINRS toolkits to support successful patient engagement

Meeting Date: Wednesday, April 3, 2019
Meeting Time: 2:00pm Central Time (12:00pm Pacific Time)

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Meeting number (access code): 628 960 836

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