The Recruitment & Retention Resource Library is a comprehensive repository of resources designed to assist you and your team in planning for recruitment and retention, exploring innovative methods, and connecting with additional campus and local services.
We’re always updating the Resource Library. If you are looking for a specific resource, please feel free to reach out to our team at recruitmenthelp@ictr.wisc.edu.
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Planning Resources
RIC’s Recruitment & Retention Plan Template
The Recruitment Innovation Center created a comprehensive recruitment templates for recruitment, collaborator engagement, and risk assessment to help outline your strategy for engaging, enrolling, and retaining study participants.
NIH’s Points to Consider about Recruitment & Retention While Preparing a Clinical Research Study
The “points to consider” are meant to serve as a resource as teams plan a clinical research study or grant application. These “points” outline common issues that can impact clinical recruitment and retention, and where applicable, strategies are suggested to address these issues.
ICTR’s Recruitment Strategies for Clinical Trials Workshop (2023)
This workshop provides strategies and best practices for recruiting, engaging, and retaining populations in clinical trials. Our speakers discuss data-driven recruitment methods available at UW, practical strategies to increase recruitment and retention, and how to plan for recruitment and communication in clinical trials.
IRB’s Recruitment Guidelines
The recruitment guidelines outlined in the University of Wisconsin’s IRB Investigator Manual discuss participant selection, confidentiality protection, and IRB approval for all recruitment methods, including initial contact, email, clinical, MyChart, and social media, while also prohibiting certain practices like finder’s fees and emphasizing security measures for email and text communications.
IRB’s Preparing Supporting Documents
This page offers guidance for University of Wisconsin researchers on preparing essential documents such as consent forms, HIPAA authorization forms, recruitment materials, and other subject-facing materials required for IRB review. It provides detailed instructions on writing consent documents and HIPAA authorization forms, along with support for preparing recruitment materials and other subject-facing documents that may or may not require IRB review.
IRB’s MyChart Recruitment Guidelines
Studies using Oncore and with a study record in Health Link may be eligible to recruit subjects through MyChart, UW Health’s patient portal. Study teams should describe this as a recruitment modality in IRB application materials and include invitation language using the approved UW Health invitation template (see linked page).
IRB’s Additional Resources- Recruitment Elements & Scripts
Appendix B of the Investigator Manual offers supplementary resources for University of Wisconsin researchers, focusing on recruitment strategies with detailed guidance on recruitment elements and scripts. It covers essential components to incorporate into recruitment letters, provides a basic introductory telephone script, outlines a script for eligibility screening, and offers guidance on retaining identifiable information for future purposes.
Considerations for the design of informed consent in digital health research: Participant perspectives (2024)
This paper discusses how to improve consenting practices. Participants in this focus group study noted that they want material presented at an appropriate information level, and “…referenced the subreddit ‘Explain it Like I’m Five (ELI5)’ as an example of how complex science topics can be communicated in simple terms.” They described preferences for how consent information should be formatted: FAQs and short videos work well and different learning styles should be taken into consideration. The authors comment that questions asked during consent should be an important indicator of whether you are providing material in an easily digestible manner. They encourage researchers to ask participants “what other people might find confusing” as a comfortable way to gain insight into elements of the study that may be uncomfortable or perplexing to prospective participants.
IRB’s Consent Template
This template aims to aid study teams in crafting combined consent and research authorization forms for studies with physical risks to subjects, providing model language in black text and instructions in red for customization. Blue text is to be included if the HIPAA Privacy Rule applies, while other colored text is for study-specific information. The formatting should be retained for readability, including font sizes and spacing, with tables and illustrations added as necessary. Before IRB submission, remove all instructions and color, ensuring all text is black, and refer to additional guidance for formatting suggestions and VA-specific research.
REDCap e-Consent Overview
Learn how to use REDCap to create an e-consent for your clinical trial. Additionally, you can learn more about Form Versioning and Formatting your e-consent.
TIN’s Informed Consent Guidance Manual (2025)
TIN developers explain: “This resource was created to help researchers and study teams engage in the consent process to facilitate informed decision-making about study participation.” This manual discusses best practices for communicating health information as well as consent processes involving pediatric assent and legally authorized representatives and surrogates. We recommend this resource particularly for those who are new to research as it’s a useful introduction to a lot of concepts important to the informed consent process.
UM’s Plain Language Medical Dictionary
This dictionary provides an alphabetical list of plain and preferred language alternatives for research and medical jargon.
PHCC’s Plain Language for Public-Health
Using plain language in research is essential because it ensures that information is understandable and useful to your audience. This resource guides researchers in best practices in using plain language- by communicating clearly and concisely, researchers can facilitate comprehension and build trust with their audience.
UW’s Plain Language Training
The University of Wisconsin-Madison offers Plain Language training to faculty and staff, consisting of both in-person workshops and a 4-week online course. Participants can choose to attend introductory classes or a sequential series covering word choice, grammar, content organization, and formatting. Completion of the workshops or online training earns participants a Plain Language certificate, enhancing communication skills across various positions and facilitating clearer message delivery.
NHC’s Patient Compensation Tools
An online calculator created by the National Health Council that generates a suggested compensation rate for patients, caregivers, patient organization members and others who may participate in your research by responding to a survey, participating in a focus group, reviewing materials, speaking publicly about their health experiences, serving on a board, etc. Consult this calculator when you’re planning a project budget or anytime during a project to ensure that you’re providing fair compensation to collaborators and participants.
Ethical considerations for respectful research participant payment processes. (2024)
This paper from the Journal of Clinical and Translational Science focuses on how we pay participants. The authors share practical ways to demonstrate respect for participants through your payment process. While we often focus on how much we pay participants, this paper makes a strong case for giving similar attention to the method of payment.
Fair payment and just benefits (2021)
A Journal of Clinical and Translational Science article that summarizes key participant payment considerations. The authors stress the importance of making all study costs and payments clear in the consent form. They encourage researchers to create detailed SOPs covering all possible incentive situations, such as whether a participant would be paid for an attempted blood draw or whether a participant would receive payment if they show up for a procedure that is cancelled for reasons outside of their control. The authors push back against several common concerns about payment, including the issue of potential undue inducement from paying participants more. Although the authors mention using minimum wage as a reference value we advise cross-checking this against the NHC online calculator as well as local studies that have included participant activities similar to your protocol.
TIN & Emory’s Paying Participants in Research: Time to Move Forward (2024)
Hosted by the Trial Innovation Network, the webinar “Paying Participants in Research: Time to Move Forward,” Neal Dickert, MD, PhD, from Emory University School of Medicine and the Georgia CTSA, discusses the ethical, practical, and regulatory considerations of compensating research participants. Dr. Dickert addresses common concerns about payment including coercion (8:25), exploitation (10:30), undue inducement (15:50) and fair allocation (28:30). He reviews empirical findings on participant payment and comments that some concerns about participant payment have been “…overstated or misunderstood and often have not been grounded in empirical evidence.”
UW Participant Payment System (Advarra)
For information on the UW Advarra system, please visit the KnowledgeBase and Resource Library.
ITHS’s Pre-screening 101 (2024)
This 2024 presentation by the Institute of Translational Health Sciences (ITHS) describes why and how to conduct an initial eligibility pre-screening. The presenters note this is best for outpatient studies and stress the importance of keeping pre-screening questions concise and easy for the general public to understand. Pre-screeners are a great way to save staff and participant time. Slides and a handout are available from this talk and RRRC can advise on and help you create your pre-screener- please reach out!
TIN & VU’s Weeding Out the Bad from the Good: Strategies for Researchers Preventing and Identifying Invalid Online Survey Responses (2024)
With the explosion of AI and machine language learning & modeling in the last few years, online surveys are seeing an increase in invalid, fraudulent, and/or bot responses mixed in with valid human responses. This session provides an overview of identifying and preventing invalid survey responses, including examples from the presenters’ experiences conducting online surveys, and the results from a recent survey of researchers conducting online surveys. The focus of the presentation is to discuss proactive strategies for invalid survey response management, including specific REDCap settings.
Detecting, Preventing, and Responding to “Fraudsters” in Internet Research: Ethics & Tradeoffs (2021)
The trend of online research offers considerable advantages but is accompanied by inherent risks- notably fraudulent practices like multiple participant entries. Addressing and mitigating such fraudulent behavior is imperative for researchers to safeguard the credibility and validity of their findings, and uphold the standards of scientific integrity.
When Research Becomes All About the Bots (2024)
Fraudulent survey and imposter qualitative interview responses may be an issue when recruiting off social media. This paper describes a variety of methods you can use to avoid this issue and to engage in participant validation- see the supplemental Participant Validation Guide.
Methodological Challenge: Addressing Bots in Online Research (2023)
This paper includes practical strategies for avoiding bots in online surveys and provides several case examples of studies that were beset by bot responses.
Letter to the Editor: A possible threat to data integrity for online qualitative autism research (2023)
Lastly, this paper provides a table listing pros and cons of potential strategies to mitigate threats to data integrity in online qualitative research.
Real-time evaluation and adaptation to facilitate rapid recruitment in a large, prospective cohort study (2024)
This paper is a wonderful example of a study in which the team carefully tracked implementation and recruitment outcomes, moving quickly to deploy solutions. They also describe yield from various recruitment methods (including targeted mailings and social media) and staffing needs/FTE over the course of the study.
Plan-Do-Study-Act (PDSA) for Evaluating Recruitment Efforts (2024)
PDSA is a technique you can use to explore whether your recruitment approach is working, and how it may be improved. This paper describes how the study team meaningfully used several cycles of PDSA to understand how the recruitment process was working for their qualitative study.
Materials
RIC’s Recruitment & Retention Material Content & Design Toolkit
This toolkit was created by the Recruitment Innovation Center (RIC) in collaboration with the RIC Community Advisory Board and includes guidelines, templates, examples, and resources centered around our partners in research-study participants.
Design Tools
Canva
Canva is a free-to-use online graphic design tool. Use Canva and their templates to create recruitment social media posts, flyers, presentations, posters, videos, logos and more. Opt for the paid version for additional templates and graphics.
Adobe Express
Adobe Express is a user-friendly design tool that allows individuals to create visually appealing content quickly, even without advanced graphic design skills. It offers a wide range of templates for social media graphics, flyers, posters, presentations, and more. Access Adobe Express by logging in with your UW enterprise account.
UW Branding
UW’s Applying the Brand in Print
This webpage includes best practices, tools, and resources for printed communications at UW–Madison. Learn more about QR code best practices and UW’s colors, graphics, logos, and available photography.
UW’s Tips for Creating Branded Designs in Canva
Learn how to access and upload UW brand colors, fonts, logos, campus photo libraries, and graphics to Canva for your study and participant-facing materials.
RIC’s Study Website Toolkit
This study website toolkit is designed to help researchers/study teams learn about some of the benefits of having a study website and will provide a basic overview of what to consider before and during the process of designing and developing a website.
WiscWeb WordPress Service
WiscWeb is a platform for creating and maintaining a UW-Madison branded website. Sites using WiscWeb are built with the UW Theme and hosted in the cloud for fast performance and high availability. Build out your site in private mode, then schedule an official launch when the site is ready to be public. Their team is available to help you if you get stuck along the way. If you’re interested in creating website for your research lab, see the Lab Website Example. Note: If you’re looking for additional study website examples, please reach out to our team at recruitmenthelp@ictr.wisc.edu.
Methods
University of Utah brief talk on “Honing Your Elevator Pitch” (2025)
This 27-minute video focuses on how to develop a brief elevator pitch, which can be useful when you’re recruiting study participants. This speaker presents on a low stress and simple way to plan and practice for impactful verbal communication, breaking it down into 5 steps. This talk was part of a series about communicating your research for impact.
Best Practices for Engaging People with Memory Changes in Research During Hospital Stays (2021)
This 12 minute YouTube video demonstrates how to speak with patients with memory changes about a research study. A lot of what is shared is applicable to any recruitment work occurring in medical settings. This would be a very useful video to incorporate into Research Coordinator training.
General
Pew Research Center: American’s Social Media Use
To better plan for social media recruitment, take a look at a the Pew Research Center’s recent findings on social media use.
RIC’s Social Media Outreach & Recruitment Toolkit
This toolkit was developed to help researchers and teams learn about the benefits of social media and provides guidance on using social media to recruit for research studies.
Meta (Facebook & Instagram)
TIN & OSU’s Social Media Recruitment with Meta Restrictions Webinar (2023)
In January 2021, Facebook (now Meta) changed their privacy policy, making it more difficult to target ads for clinical trial recruitment. During this Trial Innovation Network presentation, the presenter from the Ohio State University will explain how to build a social media ad for recruitment.
UConn’s Leveraging Social Media to Recruit Research Study Participants Webinar (2020)
This University of Connecticut webinar presented strategies for successful recruitment using social media, including optimizing your efforts on different platforms and identifying and managing fraudulent research participants.
MCRI’s Facebook.com Advertisements to Recruit a Farming Population for an Online Research Study: Lessons Learned (2023)
Presented at an ICTR Clinical Trial Community of Practice webinar, the Marshfield Clinic Research Institute study team explains how they utilized Facebook Ads to recruit the farming population for their study. Learn how the team created their advertisements and marketing plan, moderated comments, evaluated performance, and more.
Using Reddit as a recruitment strategy for addiction science research (2023)
This paper provides a good introduction to Reddit, including a case study on its use to recruit for studies on depression and alcohol use. The authors provide 5 recommendations for successful and respectful recruitment from Reddit and discuss its limitations, including generalizability and sampling bias.
Free Content Tracking Templates
Smartsheet has gathered a collection of the best free marketing campaign tracker templates to help you track, analyze, and optimize your strategies. These templates, available in both Excel and Google Sheets formats, cater to various roles and schedules. Included in this collection are social media templates for strategy and planning, content calendars, budgeting, auditing, and reporting. All templates can be easily customized to meet your specific needs.
RRRC TIP SHEET: Creating an effective research recruitment email using the Research Email Service (2025)
Planning to use the Research Email Service to recruit UW faculty, staff and students? The RRRC created a brief tip sheet describing best practices for writing a high quality and succinct recruitment email. This tip sheet features examples from actual recruitment emails, to give you a sense of what works best for this recruitment method.
University Research Email Service
The University of Wisconsin-Madison’s Research Email Service can send research recruitment messages on your behalf to general groups on campus, including students, faculty/staff, or your own list of email addresses. You can select from listservs including all current UW–Madison employees or all current UW–Madison students, or filter by a few categories.
Services
Wisconsin Network for Research Support (WINRS)
WINRS can help you engage the community in a way that is meaningful and beneficial to both your research team and community members. They provide consultation services for all research stages, including community engagement strategies and advisory board facilitation. They connect researchers with community advisors like Community Advisors for Research Design and Strategies (CARDS) and Board of Older Adult Advisors(BOAA). They offer a free initial consultation to explore partnership opportunities and provide assistance with meeting planning, budgeting, and engagement activities.
Morgridge Center for Public Service
Interested in community-based research or engaging the community? The Morgridge Center for Public Service makes it as easy as possible for the community to connect with campus and for students, staff, and researchers to connect with the community. View their website to learn more about their services, learning opportunities, funding, and events.
Resources & Tools
Why Am I Always Being Researched
Why Am I Always Being Researched? is a guidebook to shift the way community organizations, researchers, and funders uncover knowledge together. This guidebook discusses how community organizations, researchers and funders can change these as part of the collaborative research process. Includes Chicago-based examples but relevant to all engaging in community-based work.
In It Together: Community-Based Research Guidelines for Communities and Higher Education
This toolkit, prepared originally in 2007 and updated in 2021 by The Community Research Collaborative, offers advice for both community-based and campus-based people who wish to form partnerships for collaborative, community-based research (CBR).
Community Engagement Principles & Recommendation
Elevated Chicago presents a set of Community Engagement Principles & Recommendations aimed at improving meaningful participation in decision-making processes regarding the built environment. Through championing for dedicated budget lines, setting minimum engagement percentages, and addressing recurring engagement patterns, they seek to foster proactive, and impactful community involvement in Chicago’s development initiatives.
SC CTSI’s Resource for Integrating Community Voices into a Research Study
This resource, prepared by the Southern California’s Clinical and Translational Science Institute, outlines the importance of community engagement in translating clinical practices and innovations into community settings, with a focus on involving varied collaborators such as academic health centers, community organizations, clinics, and residents. It provides guidance on establishing and maintaining Community Advisory Boards (CABs) for research studies, emphasizing the collaborative process of involving community members in all stages of research to ensure relevance and effectiveness.
AIR’s Leading a Highly Engaged Community Advisory Board
The American Institute for Research created this guide on how to recruit, engage, and compensate CAB members. It provides best practices for communication with CAB members and features guidance on whether your CAB will need IRB oversight. It also includes a sample CAB meeting agenda.
Urban Institute’s Tools and Resources for Project Based Community Advisory
Produced by the Urban Institute, this document details key considerations to bear in mind if you’re considering using a CAB and provides a useful readiness checklist to assess whether you have necessary conditions and resources to propose or launch a CAB.
NHC’s Patient Compensation Tools
An online calculator created by the National Health Council that generates a suggested compensation rate for patients, caregivers, patient organization members and others who may participate in your research by responding to a survey, participating in a focus group, reviewing materials, speaking publicly about their health experiences, serving on a board, etc. Consult this calculator when you’re planning a project budget or anytime during a project to ensure that you’re providing fair compensation to stakeholders and participants.
Recruitment Core (EHR Recruitment)
The SMPH Recruitment Core is a collaboration between the SMPH Office of Informatics and Information Technology, the UW Clinical Trials Institute, and UW Health Information Services. They utilize data and technology, including electronic health records, to optimize clinical research recruitment efforts using the following services:
- Feasibility Counts
- Candidate Recruitment Lists
- MyChart Recruitment Invitations
- Real-time Recruitment Alerts
- Other Health Link Builds
Note: Not all Recruitment Core services are available to faculty outside of the UW-Madison Health Care Component. If you’d like to learn more, please request a consult from our intake form.
UW CTI’s MyChart & Research: Recruitment & More (2024)
UW’s Clinicals Trial Institute presents on the MyChart platform and how it can be utilized to identify and recruit potential clinical trial participants at UW–Madison.
IRB’s MyChart Recruitment Guidelines
Studies using Oncore and with a study record in Health Link may be eligible to recruit subjects through MyChart, UW Health’s patient portal. Study teams should describe this as a recruitment modality in IRB application materials and include invitation language using the approved UW Health invitation template (see linked page).
*NEW* MyChart Recruitment Invitations
Studies that use MyChart Research Recruitment Invitations should contact the Clinical Research Program Specialist Team (crps@uwhealth.org) before submitting the invitation text to the Institutional Review Board (IRB). The team will ensure that the invitation conforms with the template approved by UW–Madison and UW Health, preventing additional study team work and the need for re-review by the IRB.Please note that while IRB approval is required to recruit via MyChart, study teams must also comply with UW Health requirements for this type of MyChart use.
UW’s Guidance for study teams with members inside and outside of the UW-Madison Health Care Component (HCC)
This document is for human subjects researchers conducting health related research with a study team that includes individuals appointed or enrolled both inside and outside the UW-Madison Health Care Component (HCC). Please read if you are interested in recruiting UW Health patients.
RIC’s Referring Providers: An Outreach Guide
The Recruitment Innovation Center created a how to guide on normalizing clinical trials in your community and encourage provider referrals.
Research Match
Research Match is a nonprofit program funded by the National Institutes of Health (NIH) that connects volunteers interested in research studies with researchers from top medical centers across the U.S., facilitating impactful health research.
Distributing a survey using Every Door Direct Mail in an ideal use case (2025)
Wondering about mailed paper surveys to reach people in a targeted geographic area? This paper has all the details you seek! The authors describe their use of “…a lower cost, explicitly anonymous, mail-based survey distribution method called Every Door Direct Mail (EDDM). This service, offered by USPS, helped them to reach people in a specific Midwest area and secured a response rate of 10.2%. They provide detailed instructions on how to complete such a mailing and what it cost in terms of USPS charges, material costs, incentives, and staff time.
Structures and strategies for retaining an international pediatric cohort from birth: Lessons from The Environmental Determinants of Diabetes in the Young (TEDDY) study (2025)
This paper provides a detailed write up of over 100 retention strategies used by a pediatric longitudinal cohort study on type 1 diabetes. They were diligent and creative in their retention efforts and we encourage perusing this article even if this is not your topic area or population of interest.
Approaching Retention within the ABCD Study (2018)
This paper describes retention methods for a 10 year long study of adolescents. The authors provide practical tips on building rapport and contacting hard-to-reach participants. They also discuss using Motivational Interviewing (MI) to communicate with families, using it with participants who are ambivalent about or resistant to continuing study participation.
UW South Madison Partnership (UWSMP)
The UW South Madison Partnership (UWSMP) is a UW–Madison initiative that supports the South Madison community and fosters mutually beneficial relationships. Located in The Village on Park, the recently expanded space includes offices, classrooms, co-working areas, conference rooms, and gathering spaces. UWSMP is an excellent location to post research flyers, meet participants in the community, or host events to share research findings. Visit their website to learn more about reserving space.
Eastpark Medical Center
Eastpark Medical Center (EMC) is the next step in UW Health’s continued efforts to integrate studies of new therapies and treatments directly into patient care. Therefore, the EMC building includes an Infusion Center to accommodate oncology, non-oncology, and clinical trials infusions, a Clinical Research Unit (CRU) to assist complex clinical trials participants with lengthier treatments, a Research Lab to process same-day biological samples from trial participants, and EMC offers Research Exam and Consult Rooms that can be reserved by clinical research staff for participant visits.
Participant Populations
Services
Community-Academic Aging Research Network (CAARN)
CAARN brings together community and health system partners with academic researchers to conduct research to improve the health of older adults. They also provide training, venues for networking, assistance with grant writing, and resources to facilitate engagement in community-based aging research.
Center for Aging Research and Education (CARE)
CARE supports timely research on aging and elder care by bringing together a campus network of faculty, students, and staff. It fosters inter-professional collaboration and community engagement to enhance nursing research and evidence-based practice. CARE also offers platforms for researchers to share their work with academics, clinicians, care providers, and the public.
Board of Older Adult Advisors (BOAAs)
To increase health researchers’ engagement of older people, the Center for Aging Research and Education (CARE) coordinates two community advisory boards, called Boards of Older Adult Advisors (BOAAs). BOAA meetings are co-facilitated by CARE and the Wisconsin Network for Research Support. There is a Madison BOAA and a Rural BOAA, which health researchers can meet with one or both boards to get their input throughout the research process, from study design to recruiting materials to data analysis to dissemination strategies.
Alzheimer’s Disease Research Center (ADRC)
UW’s ADRC is working to help further scientific research in Alzheimer’s disease and related disorders. They also make their data and resources available to investigators who are approved through the electronic Resource Request Application. Resources consist of Human Subject Data, Wisconsin ADRC Participants & Caregivers, and Stored Biological Samples. They also offer a variety of services, including genotyping, neuroimaging, and more!
Resources & Tools
Tailoring Research Recruitment for Acute Care Settings Recommendations from People with Dementia and their Caregivers (2021)
This paper by a UW team touches on themes that are useful to anyone recruiting older adults in the acute care space. It breaks down recommended steps for recruitment and provides insight into how older adults and caregivers view research team members and their verbal communication.
The Madison Metropolitan School District
The Madison Metropolitan School District (MMSD) accepts external research requests, which must go through the External Research Committee (ERC). All research projects involving MMSD require ERC review to protect participants. For proposal submission guidance, researchers can contact the Research & Innovation Department. Learn more about the IRB’s Guidance on Research in K-12 Settings.
PeachJar
Peachjar is a digital flyer platform that allows researchers to reach parents for study recruitment through school-approved emails and web flyerboards. It helps increase parent engagement with interactive content and call-to-action buttons, and provides metrics to track the effectiveness of the flyers. Note: This is a fee-for service resource. A 2024 paper discusses costs and feasibility of using PeachJar to recruit. Several UW labs have used PeachJar for study recruitment- reach out to RRRC for more information.
IRB’s Enrolling Participants with Limited English Proficiency Guidance
This section of the IRB’s Investigator Manual provides general information about enrolling participants with limited English proficiency, including requirements related to consent, interpreters, and written translations. Additionally, find resources for Oral Interpretation & Written Translation, including approved UW vendors.
UW PREP’s Enrolling Research Participants with Limited English Proficiency: Guidance and Resources (2024)
Individuals with Limited English Proficiency (LEP) are those whose limited ability to read, speak, write, or understand English interferes with effective communication in the English language. Learn what’s needed to make your research available to LEP research participants. Will your study include UW Health participants? 18:50 in the video covers considerations for this group. Not working with UW Health participants? 08:45 describes the process for those outside of this care system. Practical tips for working with interpreters are provided at 21:20. Information on translating long form consents is given at 39:45 and guidance on short form consent process begins at 43:40. HIPAA considerations are covered starting at 52:14.
Structures and strategies for retaining an international pediatric cohort from birth: Lessons from The Environmental Determinants of Diabetes in the Young (TEDDY) study (2025)
This paper provides a detailed write up of over 100 retention strategies used by a pediatric longitudinal cohort study on type 1 diabetes. They were diligent and creative in their retention efforts and used visual materials (books, cartoons, videos) to engage children and help them understand the study.